August 29, 2023 Totally not sure what day it is. (2am actually). Logan airport’s traffic is horrible and the airport isn’t very well designed. I...
August 22, 2023 I’m a street-walker today. Had lunch with a friend that has cancer. Waiting and not knowing what is going on = cancer. It sucks!! The...
August 21, 2023 Walked by the dog and being attacked by bugs. Daughter leaves soon for Boston and her new life. Nothing new on the cancer front. I wish I could make...
August 19, 2023 Was with Max at UCLA. If this crap isn’t working……….Uncertainty is out of control. Stayed on campus at the Luskin center which...
August 15, 2023 Not any happier about my CT. Awaiting PET to see if this is really working or not because it is a mucinous tumor. My in-person visit was scheduled as a...
August 14, 2023
SUCKS!! Tumors are stable but not shrinking. PET next to see if this may be shrinking more than the CT shows.
August 13, 2023 Medicine for scalp-DENIED! They want to have someone help me with my care. They want to be my friend–not. Max off to UCLA tomorrow for...
August 11, 2023
CT on Monday. I’ve never had an opportunity to actually physically meet the oncologist despite a letter offering that opportunity. Hmmmm.
August 10, 2023 Check out all the products I’ve accumulated over the last 3 weeks. This is just for my itching scalp. Many are rated “C” for crap...
August 9, 2023 Haven’t blogged in a while, I’m in hiding. Voice hoarse. Finished radiation. Made the Erbitux rash way worse. Hiding in the house and...